Hope

Hope has been on my mind a lot over the last week as I think about what it must feel like to be my 16 year old, Mackenzie.  Despite everything that has happened to her over the last few years at school, she has practiced forgiveness and patience and has continued to hold out hope that people will do what they promise and what is right. I have always been patient and I realize that I tend to be a hopeful person, too. I think I’ve always been that way and maybe that has rubbed off on Mackenzie or maybe we were both just born that way.  I don’t really know how that works. What I do know is that we are both people who can be patient and who look for hope. The way I see it, these are qualities that weigh heavily in our favor.

People are very curious about Mackenzie, but they don’t always seem interested in the ways she needs them to be.  Right now they’re more interested in her gender identity. It’s the question I am most often asked. Even when I am in the middle of a conversation about what is most affecting her.  Her deafness. I get it. Not everyone has a transgender person in the family and it must seem like the biggest deal in the world to a lot of people. I guess it is a big deal, but not to me.  Not right now. Mackenzie is almost 17 years old. I’ve known that she didn’t fit quite right into the gender role she was assigned at birth since she was as young as six years old and I found her in one of my formal dresses adoring herself in a full length mirror in my bathroom.  I have a whole photo shoot of that moment. I need to find those images on my computer. She knew she was and she still is beautiful. It doesn’t matter whether she is called Max or Mackenzie or whether she wants to be called a boy or a girl. She is the same exact person she has always been.  I’m not here to tell her who to be and I never would. People praise me for this attitude and tell me how lucky Mackenzie is to have me as her mother. I appreciate that and I know that is true because I know that not everyone accepts their children for who they are. I just feel like her mother.

Don’t get me wrong.  I’m glad that there are people who are curious about Mackenzie and who support her and accept her, but what I truly wish is that people would take an interest in the fact that Mackenzie is deaf and she is being discriminated against.  It’s a big deal. It makes her really expensive to educate because she needs an interpreter at school. She is entitled to it under the law, but we have to fight for it ourselves. The discrimination against Mackenzie as a deaf person permeates every single crevice of our lives.  She has been traumatized. It hurts every person in our family. It’s hard when hope falls out from under you and you feel hopeless. It wipes you out and makes you feel depressed. That’s just what hopelessness does. That’s why hope is so important to me.

Mackenzie wrote something the other day about what it feels like to be discriminated against.  I read it. Yesterday she asked me if I know what it feels like. I don’t. But I know what it feels like to be the mother of someone who has been discriminated against.  It is hurting me deeply. I can only imagine what it feels like to be her. Now at a time when she is most vulnerable, she has been betrayed again by the same people who have been hurting her all along.  She just hoped they would fix the problem. It stands to reason since that’s their job. So far hope and patience haven’t worked out in this situation at all. Not for either of us. Mackenzie has been an educational refugee all year because she doesn’t have an interpreter.  It is a struggle to find any benefit for her at all in our schools. And she’s certainly not alone. The people who have hurt Mackenzie were supposed to teach her. It turns out she is doing the teaching. Mackenzie speaks up for herself. She doesn’t hesitate to speak publicly about how she has been mistreated because she is deaf.  She wants to call the police. She doesn’t understand how discrimination, especially against a child, isn’t a criminal offense. Why doesn’t the law work that way? She filed her own complaint about how she’s been discriminated against by the school system because it’s just plain wrong.

I was texting with Mackenzie the other day and she said that she was glad that it was happening to her instead of someone else.  I actually know that’s not exactly true. I’m certain that there are other deaf kids who are suffering in the same way, but I didn’t say that to her.  She feels like the only one right now. Instead I asked her why she was glad it was her. She said that it has to happen to someone for things to change and that she knows not everyone can handle it.  She said she knows she can because she has become so used to it. It felt like an arrow was shot straight into my heart.

I am amazed at her resiliency and so thankful for her.  She hugged me and thanked me yesterday for always being her rock.  I am thankful that I am strong and that she knows that, too. But it is the kids who are going to have to lead us out of this mess because the adults are just failing.  We live in an adult world where we have to navigate through lawyers. I am in awe of Mackenzie’s simplistic power.

And there it is again. There is always more hope when I look for it.  I love that about hope.

Published by stuckinmybra

First and foremost, I am a mother, but I am also an education lawyer and policy specialist, an advocate, and an activist. I've been told by my closest friends that I am a fighter. My practice area is disabilities and education, which is where I have been practicing since 1999, before I had my own kids who are now teenagers and are all educationally identified as twice exceptional. I write about what is on my mind, which feels like a messy file system of old and constantly new information. I think about my kids and the people they are and how to help them become who they want to be in this world. I write about issues that affect deaf people because one of my kids is deaf. I write about giftedness, autism, trauma, inclusion, mental health and chronic illness because those are all things that affect my family. I write about my own life and the people in it. I hope what I write touches peoples hearts and opens people’s minds because I think people in our world need to have more understanding and compassion. I'm here to tell the straight up truth.

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