Jared Polis Lesson #1

Dear Colorado Governor Jared Polis,

https://stuckinmybra.com/2019/12/08/maxs-poem-goodbye/

This is a poem written a few years ago by our child when they were feeling tired of struggling. Our child was 16 at that time. They were asked to speak up about their experience in the behavioral healthcare system by the Colorado Commission for the Deaf, Hard of Hearing, and DeafBlind at a Town Hall meeting you requested. Now 19 they are too exhausted from fighting for themself and too sick to work or go to school. Our children are having to claw their way through the same old arbitrary and oftentimes capricious red tape in the Colorado systems that bar their access to all areas of a productive and happy life.

Our education, Colorado Access
healthcare, and vocational rehabilitation systems are wearing down children and killing their life force. Our children are told by their schools, workforce counselors, and social workers that they are adults who must be able to take care of themselves at 18. They are told to be patient because our systems can’t serve them the way they are supposed to. They are told that is just the way it is here in Colorado. They are told it’s tough luck.

  1. Do you think that five years of patience for adult issues is enough time for a child to suffer? We think it’s torture.
  2. What is Early and Periodic Screening, Diagnostic and Treatment (EPSDT) for if not for the medically necessary healthcare for children? Nobody else seems to understand it.
  3. When will children with disabilities in Colorado stop being neglected and abused by our public agencies whenever they step foot outside of their family homes? That’s the reality of life in our state.

These are things that we really want to know and questions you need to be able to respond to, especially before anymore average families like ours decide to move into our state. We can’t all afford to retain counsel and send our children out of state where they can be safe and secure while you work things out.

That’s the truth.

Sincerely,

Lisa A. Weiss, J.D. and Jason Rudofsky
Angry and Exhausted Colorado Parents who want some real answers from the Governor of the State of Colorado

Published by stuckinmybra

First and foremost, I am a mother, but I am also an education lawyer and policy specialist, an advocate, and an activist. I've been told by my closest friends that I am a fighter. My practice area is disabilities and education, which is where I have been practicing since 1999, before I had my own kids who are now teenagers and are all educationally identified as twice exceptional. I write about what is on my mind, which feels like a messy file system of old and constantly new information. I think about my kids and the people they are and how to help them become who they want to be in this world. I write about issues that affect deaf people because one of my kids is deaf. I write about giftedness, autism, trauma, inclusion, mental health and chronic illness because those are all things that affect my family. I write about my own life and the people in it. I hope what I write touches peoples hearts and opens people’s minds because I think people in our world need to have more understanding and compassion. I'm here to tell the straight up truth.

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